Tag Archives: DMD

3 things my son lost with his disability

Recently, our son began needing a wheelchair. It’s a journey thousands face.

In this process, we’ve received lots of love and support from friends and family. Yet at the end of the day, we often feel like people don’t know what to do with Joshua because of his disability. Here are three things we’ve noticed that he has lost. Continue reading 3 things my son lost with his disability

An open letter to dads of terminally ill children

Dear Dad

Welcome to the club. In your worst nightmare, this club isn’t a club you’d want to join.

You are a no deadbeat dad.

You are a great dad.

You’ve been there, and you plan on being there. At all the ball games. All the extra curricular events. Every major event.

Except now you don’t know if there will be any ball games.
Child in Lexington Cemetery

Continue reading An open letter to dads of terminally ill children